Saturday, December 24, 2011

Merry Christmas

Well, It doesn't feel like christmas, but it is! The hospital is pretty empty tonight! But my boys will be here to visit me soon, and my dad flew in, and of course I always have my amazing Marc! So I am blessed! I figure I can sacrifice one christmas so that I can have 40 to come, right? I did get some good news, apparently leukemia can hide out in your spinal fluid sometimes, so they removed some of my fluid and replaced it with chemo (I do not reccomend this procedure!) But my spinal fluid came back clear! So there is another amazing blessing! Everything keeps going smoothly and I couldn't ask for more! I hope everyone has an amazing christmas and I miss you all!

Wednesday, December 14, 2011

Well, I am home! It is amazing to be with family, my own bed, my own schedule, it's great! HOWEVER, I don't feel like ME. This doesn't really feel like my house and I'm feeling very lost inside. My sweet family has been there with me through the panick attacks, melt downs and complete fatigue! I keep wondering when I'll feel like me again, and sadly from what I've heard, it may take months. To all my friends, don't give up on me, I'm still in here somewhere! :)

Saturday, December 3, 2011


I love music! It is saving me right now! It can make you calm, make you excited and make you feel emotion! For a caged bird, it's a lifesaver! Here is my basic day:
Wake up
Eat breakfast
Take a nap
Order lunch while listening to music
Eat lunch
Go for a walk
Take a nap
Order dinner while listening to music
Eat dinner
Visit with family
Take a nap
Listen to music
Go to bed

Isn't that exciting?? :( see music saves me! I hope people in prison get music....

Friday, December 2, 2011

The plan

Well, as many of you heard, my bone marrow biopsy came back that my leukemia is in remission! I am so grateful for all your prayers! I think if I had to stay another month here and do that all over again, I just might lose it! So now we are just waiting for my immunity to hit 1000 (it hasn't left 0 :( The doctors predict I can go home sometime at the end of next week! Then I will stay home for a week, do another bone marrow test just to be sure, then I have to come back for a 6 day stay of follow up chemo. I will be doing follow up chemo once a month for about 3-4 months. At that point they still may do a bone marrow transplant just to be safe. I hope we don't have to do that though! So that's the plan. I can't wait to get home and be a mom again! I miss my family SO much!